We know how troubling, uncertain and fearsome the diagnosis of Noonan Syndrome can be for you or your loved ones.
The NSAA wants you to know you're not alone. Our website contains resources for your relevant health professionals, teachers and other family members here. If we can help you in anyway or you just need someone to talk to please contact us here.
We would love to hear from you!
Here are some useful links:
Noonan Syndrome Support Group - Australia: https://www.facebook.com/groups/576253259074325
Noonan Syndrome Association: http://www.noonansyndrome.org.uk/
Noonan Syndrome Foundation (USA): http://www.teamnoonan.org/
Genetic Home Reference: https://ghr.nlm.nih.gov/
Genetic Alliance Australia: http://www.geneticalliance.org.au/
National Organisation for Rare Disorders (NORD): https://rarediseases.org/
Genetics Education Materials for School Success (GEMSS): https://www.gemssforschools.org/conditions/noonan/default
Medscape Noonan Syndrome Information: http://emedicine.medscape.com/article/947504-overview
Rasopathies Network USA: https://rasopathiesnet.org/
Dr Rene Pierpont's Minnesota Investigators in Neurodevelopmental Disabilities (MIND) Research Group: https://sites.google.com/a/umn.edu/mind/rasopathies-research