Latest events


Saturday 21st August 2021 8:30am - 4:30pm

Perth Children's Hospital, Nedlands, Western Australia

We're so pleased to announce a new Seminar after we had to cancel this event in April due to COVID-19 restrictions. The 2021 Noonan Syndrome Seminar will feature a range of health professionals from many Medical Specialties such as Cardiology, Genetics, Endocrinology, Paediatrics, Opthalmology and Allied Health Professionals from Occupational Therapy & Physiotherapy.

This Event will allow you to learn more about Noonan Syndrome, ask Medical Specialists questions and will be a great opportunity to meet other people with NS and their parents/caregivers!

PCH is located on Hospital Avenue in Nedlands, just six kilometres from the CBD. You can find transport options to get to PCH here:

Onsite parking is available and is $23.80 for the day.

The Seminar will take place in the Auditorium on Level 5.

Morning tea, lunch and afternoon tea will be provided - but there are Cafe and food services available onsite.

The Event will be streamed online - login instructions will be published closer to the date.

You can register for in-person attendance here:

Stay tuned to our Facebook, Instagram and Events Page on our website to learn more and stay updated

Melbourne noonan syndrome family Catch up

Saturday 16th November 2019 11am

Flagstaff Playground, William Street, Melbourne VIC 3000

Please bring a basket and join us for the first, of hopefully many, Victorian family picnics for the Noonan Syndrome community.

It will be wonderful to meet other people and families living in Melbourne and surrounds with Noonan Syndrome.

We hope to see you there!

Facebook Link:


perth noonan syndrome family Catch up

Saturday 11th May 2019 10am

Ivy Watson Playground 34 Kings Park Road, West Perth WA 6005

The families with Noonan Syndrome in Perth and surrounding suburbs are meeting at Ivy Watson Playground (Stickybeaks) in Kings Park Saturday 11th May 2019 at 10am. If you live nearby and can attend please do so!

It will be wonderful to meet other people and families living in Perth with Noonan Syndrome.

We hope to see you there!



2016 Noonan Syndrome Seminar

Sunday 21st August 2016, 10.00am-3.00pm

Kinghorn Cancer Centre, 370 Victoria Street, Darlinghurst NSW 2010

Genetic Alliance Australia Newsletter Read

Noonan Syndrome by Dr Anne Turner Read

Cardiac Findings in Noonan Syndrome by Dr Jonathan Forsey Read

Gut Problems and Noonan Syndrome by Dr Reuben Jackson Read

NDIS Presentation by Mary Hawkins Read