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of living with Noonan Syndrome


What is Noonan Syndrome?

Noonan syndrome (NS) is a genetic condition that affects many areas of the body that occurs in between 1 in 1000 to 1 in 2500 individuals. NS is characterized by mildly unusual facial features, short stature, heart defects, bleeding problems, skeletal malformations, and many other signs and symptoms.

Noonan syndrome is one of a group of related conditions, collectively known as RASopathies. These conditions all have similar signs and symptoms and are caused by changes in the same cell signaling pathway.

There is no cure.

Please click here for  a video on RASopathies

Hear their stories

Noonan Syndrome is genetic disease with diverse manifestations and presentations.

We invite you to meet the families and individuals dealing with Noonan Syndrome and hear their unique and moving stories.


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